Lilypie 2nd Birthday Ticker
Lilypie 2nd Birthday Ticker

Wednesday, October 31, 2007

Finally an Update!

I wonder what Bryce will be when he grows up????

And heres Bryce..... Oh thats not Bryce, thats his lunatic grandfather! He dressed up for Faythes Halloween Party... Too funny!


Look at his coloring, BLUE! This is another issue that we are dealing with.
His entire body turns this color from time to time and we aren't sure why.
The pic doesn't do it any justice, it was so bright blue I was in shock!

This is what he does with his cannula, he looks like a snake!


Update on my last post:
I did end up calling pedi (not at 2am) and they said we needed to come in right away that the hair loss sounded too extreme. They agreed when I got there that he had lost way too much hair in one day.... They thought maybe thyroid, so they took blood. Not his thyroid, which was good news. They basically determined that it is hair loss due to Post Traumatic Stress. Which probably occured from when he ended up in the PICU. SO thats that all is well now, hair has finally stopped falling out.

Anyway as of today Bryce is 11lbs 5oz.!
We start Synagis next week.
We did end up in the hospital again Sunday for breathing again. We were basically told to get familiar with the hospital because it seems like it will be one of those winters.... Hopefully not!

Also pulm. says we will not wean his O2 AT ALL until the summer. This is pretty crappy, but if it helps him then thats all I can ask.
OT came today and they are thinking we need to see ENT now due to Bryce snoring like a chainsaw, and when he drinks his bottle he always sounds SUPER congested even though he's not. OT is thinking maybe some sort of irritation or collapse somewhere in his throat, possibly why he doesn't sleep well. So he wrote a note to Bryce's pedi suggesting a visit with an ENT to rule anything out. I wonder how many different kinds of specialists we will see this year???
Also our last hospital stay has prompted us to have to see a Cardiologist again. Hopefully we can get all this stuff straight and get Bryce to where he can finally feel good for once! This poor kid has been through so much and sometimes I hesitate to call a doc with a concern because I worry that they're going to send us for painful tests or back to the hospital. I feel so bad for him and there is nothing I can do about it.
Example this last admission, we were in the ER and they were thinking he was going to have to go back to ICU and of course they HAVE to have a line in to go there so they stuck him in every extremity, which made him scream, and during that they blew a vein so severely that he is bruised from finger to above wrist.. and then has blown veins everywhere else. Its not fair. I can understand to a point that they "need" a line but come on, when you see that his veins are blowing so bad that blood is traveling up inside his arm and causing bruising and swelling you should consider if he REALLY Needs it. Then after they FINALLY got a line in they never used it! THEN to make matters worse they put it in his foot and he is so spazy and kicks allot that the next day he kicked the thing out and blood was going everywhere I finally told them to take it out and leave it out! It frustrates me soooooooooo much!
Anyway now Bryce has had diarrhea for the last 2 days and then vomited really bad today..... I don't know whats up with him but I don't like it.
But in happy news he is smiling allot! Some new pics up today!

Wednesday, October 17, 2007

Any thoughts????

For all you moms out there, I am hoping someone has had this happen too, because I am about to freak out!
This morning Bryce had a full head of brown hair. Now at 9 pm he basically has none left. I have noticed over the course of the day that he looked like he was losing his hair, well now I KNOW he is! I started rubbing his head and clumps of his hair is coming out!!!!! IS THIS NORMAL??? I don't think it is but I couldbe wrong.. I want to call his pedi but I don't want to sound stupid. "Hi Dr., I know its 2 am but my son is losing his hair, what do I do" ??? Rogaine??? If anyone knows whats going on please let me know!

Lucky??

Not much to update except that my 4 year old has been sick with a fever for the last 3 days, and I am trying my hardest to be sure the baby doesn't get it, but its not easy! Bryce hasn't been weighed since the last time but I'm sure he's getting heavier.... trust me!
So since there really wasn't much to update I thought it would be neat to show where we were compared to where we are now.


Here he is now..... October 2007. So cute and FAT! Look at his cheeks they crack me up!



This was taken about 4 days after Bryce was born, he fit in my palms..... so tiny.

Still to this day I don't believe how lucky we have been! I still can't figure out why we were so lucky. When he was born we were told he "probably wasn't going to make it" his heart had stopped, his lungs collapsed, he was septic..... The list goes on and on, but my little man had the will to survive and wasn't going to let some doctor tell him he wasn't going to live. (trust me though the NICU was the best and if it weren't for them he and I wouldn't have survived!) It gives me chills to think about how far he has come.


Thursday, October 11, 2007

Eye trouble???

Hi
Well not to much to update, but I am putting up some new pics. Enjoy!
Bryce is 10lbs. now! I don't even believe it! EI came Wednesday and they were trying to do tracking with Bryce and he wouldn't go past midline on the left side, so we were thinking maybe ROP was back. Brought him in to see Dr McKabe today and structurally his eyes are fine but definitely having trouble with the left. When we see Dr Gise we should know more. Anyway thats all for now, "knock on wood" things have been quiet.




Tubby Time! Notice the strategically placed bubbles!



His sister is making him look like an elf!
Still not big enough for the Bumbo!

Go Patriots!!!

Go Patriots!!!
Finally Football season!


Cute

Look at my muscles!

Look at my muscles!

No Oxygen!

No Oxygen!
So who does he look like????

VAPO THERM!!!!! Yipee!!!

VAPO THERM!!!!! Yipee!!!
Look at me I'm on VapoTherm now! You can see my fat cheeks!

July 5, 2007

July 5, 2007
First day no oxygen...

Apnea study

Apnea study
On Monday 7/2/07We participated in an Apnea study for UMass Medical School, it is a study to try to prevent apnea in preemies.


Colee holding Bryce

Faythe Holding Bryce

We're home!

Fist time trying out the carseat before going home

Cute!

Cute!



Daddy and Bryce

Daddy and Bryce
Finally I remembered to take a picture!

Sleeping...

Sleeping...

Just to get an idea of how small Bryce is, that is my hand and its almost twice the size of him. This pic is from last week.

2lbs. 11.6oz.

Coming out for my first tubbie!

Coming out for my first tubbie!

My first Tubbie

My first Tubbie
Anne (bryce's nurse) Putting him in the tubbie for the first time

The Mommy Massage!

The Mommy Massage!
Ahhh... This is the life!

Mmmm... Fingers!

Mohawk!!!!

Mohawk!!!!
Anne not only gave Bryce his first tubby, but she also gave him his first Mohawk!

I'm only the cutest baby EVER!

I'm only the cutest baby EVER!

Mad??? What gave you that idea?

Mad??? What gave you that idea?

Peek-A-Boo

Peek-A-Boo
So in this game what comes after you put your hands over your eyes???

Bryce trying to pull out his breathing tube

Bryce trying to pull out his breathing tube
Is this thing really NECESSARY??

Bryce holding onto a toy instead of his breathing tube and pulling it out!

Mom pretty sure you should have someone else take the picture and not try to do it yourself!

Just Me and My Mom!

Just Me and My Mom!
May 8, 2007

Even on bad days I'm still so Cute!

Please NO MORE PICTURES!

Please NO MORE PICTURES!
Would you stop with the camera already!

Clean blankets, clean bum what more can a boy ask for??

Boy am I tired!

Boy am I tired!

Changing my Bed

Changing my Bed
Mom gets to pick me up while my nurse changes my bed

Happy Birthday Mommy!

Happy Birthday Mommy!
First time I ever got to hold Bryce

Best birthday gift a mom could have aked for.