Lilypie 2nd Birthday Ticker
Lilypie 2nd Birthday Ticker

Sunday, March 8, 2009

Chronic Lyme Disease

Well after being sick for many, many years we have finally found what is wrong with me! I have Chronic Lyme Disease.

This is why I am deaf, this is why all the Bell's Palsys's its probably why Bryce was so early and Faythe and Nicole have had their issues. It explains ALLOT!

About a month ago I went to a Lyme Dr in Falmouth who did a Western Blot and confirmed CLD.

I have started treatment, it has been BRUTAL. I have just been out of bed for the first time in 3 weeks this past weekend! For right now I am on Biaxin and plaquenil for 4 months... We will then see how I am and go from there. My Dr tells me it can take 18-24 months to get better (remission) if ever. He says it will be a LONG, SICK, PAINFUL road but hopefully I will get better.... We'll see.

Anyway, Bryce is going in tomorrow for surgery on his ears again! The flu has ripped through this house lately, hopefully it will get the heck out of here soon!

Go Patriots!!!

Go Patriots!!!
Finally Football season!


Cute

Look at my muscles!

Look at my muscles!

No Oxygen!

No Oxygen!
So who does he look like????

VAPO THERM!!!!! Yipee!!!

VAPO THERM!!!!! Yipee!!!
Look at me I'm on VapoTherm now! You can see my fat cheeks!

July 5, 2007

July 5, 2007
First day no oxygen...

Apnea study

Apnea study
On Monday 7/2/07We participated in an Apnea study for UMass Medical School, it is a study to try to prevent apnea in preemies.


Colee holding Bryce

Faythe Holding Bryce

We're home!

Fist time trying out the carseat before going home

Cute!

Cute!



Daddy and Bryce

Daddy and Bryce
Finally I remembered to take a picture!

Sleeping...

Sleeping...

Just to get an idea of how small Bryce is, that is my hand and its almost twice the size of him. This pic is from last week.

2lbs. 11.6oz.

Coming out for my first tubbie!

Coming out for my first tubbie!

My first Tubbie

My first Tubbie
Anne (bryce's nurse) Putting him in the tubbie for the first time

The Mommy Massage!

The Mommy Massage!
Ahhh... This is the life!

Mmmm... Fingers!

Mohawk!!!!

Mohawk!!!!
Anne not only gave Bryce his first tubby, but she also gave him his first Mohawk!

I'm only the cutest baby EVER!

I'm only the cutest baby EVER!

Mad??? What gave you that idea?

Mad??? What gave you that idea?

Peek-A-Boo

Peek-A-Boo
So in this game what comes after you put your hands over your eyes???

Bryce trying to pull out his breathing tube

Bryce trying to pull out his breathing tube
Is this thing really NECESSARY??

Bryce holding onto a toy instead of his breathing tube and pulling it out!

Mom pretty sure you should have someone else take the picture and not try to do it yourself!

Just Me and My Mom!

Just Me and My Mom!
May 8, 2007

Even on bad days I'm still so Cute!

Please NO MORE PICTURES!

Please NO MORE PICTURES!
Would you stop with the camera already!

Clean blankets, clean bum what more can a boy ask for??

Boy am I tired!

Boy am I tired!

Changing my Bed

Changing my Bed
Mom gets to pick me up while my nurse changes my bed

Happy Birthday Mommy!

Happy Birthday Mommy!
First time I ever got to hold Bryce

Best birthday gift a mom could have aked for.