Back on the Oxygen train...

Yup thats right, as of Friday night Bryce is back on oxygen. He is on as needed, during feeding and at night. We were delivered about 8 tanks and a condensor Friday night along with a pulse ox. Its not a bad thing though, it is just to help him along during stressful times of day. He desats quite a bit at night and during feeds so we need it just to make things a bit easier for him. I can say though that I cannot imagine for a minute what it is like having a child full time on Oxygen. Just the little bit that we need it is so stressful. Maybe once I get more comfortable with it it won't be so bad, we'll see... Anyway Bryce has hit 6 lbs! He such a fatty I love it! His cheeks are the best! EI came last week and Bryce is developmentally equivalent to a newborn, which he should be because he is only 2 weeks old adjusted. He is having some issues with feeding and so we are working on that. We may have to do a swallow study for his reflux and a few other things that are going on. We will see GI doc soon and find out for sure. Also we will now start seeing pulmonology to follow his lung issues. So needless to say he is keeping me on my toes, but thats OK. I just love him to pieces!

Is sleep necessary?

Hi
So its been a while since I have updated and the reason is because I am too TIRED to even look at a computer.... Bryce is doing OK, as of Sunday he was 5lbs 10oz. Still the cutest baby ever, BUT he WON"T sleep! I don't know what to do anymore. Its been almost three weeks since we have been home and he just doesn't want to sleep. (well except during the day) I have tried everything, I've tried using different beds, I have slept him in his car seat, I have even tried a little cereal in his milk (not sure if I should have) but I am desperate! Last night for example he woke up at 12 midnight and never went back to sleep until about 9am when EI/OT/PT came. Of course when they needed him to be awake. I just don't know what to do anymore..... Anyway aside from the not sleeping thing he is doing OK. Has a little trouble with the suck swallow breath thing, and turns pretty blue when he cries and even sometimes when he doesn't. The docs are looking into the possibility of a little oxygen at home and getting a Pulse Ox so we know what his sats are doing when he cries or holds his breath. He also has reflux which is making him choke and hold his breath allot. His pedi put him on Zantac for that and it seems to help. We followed up with Cardiology today and we won't need to go back to them unless we have a problem so thats good. Tomorrow in Urology for his kidney issues so we'll see about that. The rest of the family is good, Faythe is finally over her fever Knock on wood it stays away for good. And we are getting Nicole ready for school. I go in for my surgery (tying up the tubes) on the 27th provided I can find a ride, Steve started a new job and can't really take the day off for it so we'll see. Other than that all is well I JUST NEED SOME SLEEP! I will post pictures next week.

Due Date and new pictures! (see below) I can't figure out how to put them in a different spot.

So todays is officially my due date. Its so strange to think that I could possibly still be pregnant! I would be HUGE! Anyway this is when we start counting Bryce's development by his "adjusted age". For example tomorrow he will be 1 day old adjusted.

Anyway so its been 8 days since we came home from the NICU. The first night home was pretty interesting. Bryce was a little confused with his days and nights. He woke up at 9 PM and didn't go back to sleep until 8 AM the next day. But I didn't mind because he's so damn cute! Other than that though he has been truly a joy to have home! He is such a good boy. He only cries when he's hungry. He plays when he is awake. I am so happy having him home! Faythe and Nicole have been wonderful with him! Faythe is so good about washing her hands and using GermX before touching Bryce. We don;t even have to tell her to do it she just does. As a matter of fact she tells everyone that comes to my house that they have to wash and Germ X and she shows them how to do it. Shes so funny! On a bad note though she did wake up yesterday morning with a fever and not feeling good so I am a little in panic mode right now praying the baby doesn't catch it. Thankfully Nenen was willing to take Faythe for me and let her stay at her house to keep her from the baby as much as possible, and Faythe didn't mind going there because she knew she'd get spoiled the whole time right Nen? So other than that things have been wonderful I love having him home and hopefully now I can get my family put back together... We'll see! Thanks to everyone who has and is praying for he obviously made it through because of it!
Bryce came home 4lbs. 12oz. and as of yesterday when the nurse came he is 5lbs. 4oz. He's getting so fat so fast! He is too cute! The nurse comes 2 times a week and we go to pedi 1 time a week. We also saw Dr. McCabe on Monday and he said his eyes look good, we will now just have to follow up with Dr Geis. So as for now thats about it! Just trying to get used to having a baby in the house!