Lilypie 2nd Birthday Ticker
Lilypie 2nd Birthday Ticker

Tuesday, May 29, 2007

Been a few Days

Its been a few days since my last update, but things/people in my life have been a little "crazy" lately and I haven't had too much time to update but I finally have time now.

Bryce is now 2lbs. 5oz.! He is on 3 liters and 30% O2, and as cute as can be! Tomorrow is a "Big" day, he has his head ultrasound and renal ultrasound...... Lets hope they are OK. These are pretty important tests and I am praying that they are good results. Other than that there is not much to update on... Oh did I mention how cute he is??? I will hopefully have some more pics soon.

Saturday, May 26, 2007

Tubbie Time!!!!!

Today was an exceptional day! Bryce has finally hit the 1000 gram mark! Thats the magic number in the NICU. And because of that (and the fact that he is a little stinker) he got to have his first tubbie!!!! Honestly it was the cutest thing I have ever seen! At first he cried just for a quick second and then I think he realized he liked it because he was relaxing in the tubbie the rest of the time! Then after his tubbie I was able to give him a little massage, and of course like a typical male he LOVED that! I have pictures! (of course) Some of the pictures look red because when Anne was giving him his bath she put him under heat lamps to keep him warm and they gave off a red light.
Also some more good news (knock on wood) it seems his ROP may have gone away.. Not sure how but they said it did! Must be all the praying, so keep it up! Theres no other explanation for it! I'm not sure why I deserved to be so blessed. I mean we are in a pretty crappy situation but under the circumstances we have been pretty lucky... When I was in the hospital for the 4 weeks trying to keep him in all I heard day after, day, after day was that #1 I either would not stay pregnant long enough for him to even have a chance or #2 If I did make far enough that he probably wouldn't survive and so the docs wanted me to just induce labor the first day I was there and just let it go.... Well THANK GOD I didn't! Now look at what I have..... He may be tiny and he may have a few "things" going on, but to me he is the most perfect little baby and he is doing pretty good under the circumstances! He is obviously a fighter and wants to be part of this family and world as much as we want him to! I am so glad we didn't let the doctors convince us that we had NO chance. The way I looked at it was if it wasn't meant to be it wouldn't be, but I wasn't going to be the one to decide it wasn't going to be... If that makes any sense. I'm sure you know what I mean. To me all three of my kids are miracles in their own way and Bryce is no exception...... I am so thankful that I have/had the support from family and friends to be able to even get this far because if it wasn't for all of you I would not have been able to get here! Thank you to everyone for you support & prayers, I couldn't have done it with out you all! Oh also for those of you that I owe thank you cards to, they're coming I just haven't had a spare minute to get to them, but I promise I will! :) So anyway please continue to pray for us, its definitely what is getting us through...

Wednesday, May 23, 2007

Weight

Just got back from the hospital again for the second time today... Bryce weighs 2lbs. 3oz. 990 grams now! Gain of 20 grams from yesterday! Also daddy finally held him today or the first time and do you think I brought my camera????? NO that would have been to smart of me to do and we wouldn't want me to be smart now would we??? Anyway that really upset me, but now that he feels comfortable holding he will probably do it more often and I will try to remember the camera the net time. Its all because I was downloading pictures off it earlier to put on this site and I left it hooked up to my computer... Sorry

VAPO THERM!!!

So today was a good day! I came in to the hospital to find they had changed Bryce over to Vapo THerm, he is on 35% O2 and he started last night at 6 liters and is now down to 4!!! This is GREAT! It is however only a test and he may end up back on the vent but maybe if we all pray REAL hard he won't! Today is the first day I have seen him with out a million things coverng his face, it was unbelievable. As you can see his cheeks are quiet large.... The cutest cheeks I have ever seen! He is SOOOOO CUTE!!!! I just love him to death! I could eat him... :) anyway so other than Vapo Therm it was a pretty quiet day. I got to hold him of course and of course it was beautiful as always.

Tuesday, May 22, 2007

Finally New Pictures!

So I finally had a little time to figure out my computer problem.... Anyway I have added 2 new pictures of my little fatty. All 2lbs. 2 oz. of him! He is 14 inches long now too!
Today is day 3 of CPAP and "knock on wood" so far so good. Lets hope this keeps up! He is still on steroids and caffeine, Vitamin E and Iron... Its been pretty quiet the last two days. I held him today and yesterday.... and I have also been able to change his clothes and stuff which has been allot of fun. Its pretty amazing what you find fun when you spend all of your time in the NICU. :) Changing his diaper is one of the highlights of my days! So silly!
Anyway he was at 41% O2 when I left tonight which is down from yesterdays 55% so that is good too.... Not much else to report for today. Good night!

Sunday, May 20, 2007

Technical Difficulties

Well looks like I am having some issues with uploading the newest of pictures. I will have to find some time to try to figure out what the issue is, but for now I don;t have the time to do it. Sorry.
Anyway, its been a pretty good couple of days, today the switched Bryce back to CPAP for a second trial, but this time he has been on steroids so that may help, we'll see. He's been on it for a few hours and "knock on wood" he seems to be doing well with it. Some potential bad news today though, Bryce had his eye exam earlier than expected and he does have stage 2 ROP (retinopathy if Prematurity) in his right eye. Its not a huge concern for the docs yet because it is only in one eye so far and its only stage 2 which I guess isn't terrible, but they will give him an eye exam every week to watch the progression and if it does get worse they will have to do surgery. So just another thing to watch put these guys are pros and know what they are doing! Bryce also did lose 15 grams today so that drops him to 2lbs. 1.5 oz. not to bad but I would rather him stay the same or gain not lose. So thats about it today! Thanks again for everyones support and prayers, it's what is getting us through!

Friday, May 18, 2007

Sorry I can't Load the New Pictures

Yesterday I mentioned I had new pictures and for everyone to check them out, well I do but for some reason I can't get that part of this site to work. I'm not sure whats wrong and right now I just don't have them time to try to figure it out. Sorry.

Anyway today was a good day, Bryce now weighs 2lbs. 2 oz. (getting big) He is on his 5th dose of steroids. He gets it every 12 hours 4a & 4p. They have done a tiny bit more weaning on his vent he is at 18 pressure and still 19 breaths... That may change tomorrow, he has a gas at 6a, so if its still good they may wean him more. Keeping my fingers crossed... Other than that it was a pretty quiet day, I didn't go to rounds because I was holding him, and since I was there yesterday from 9a - 8p I went home semi early today (1p) and cleaned my house and then we had company so I did get back up there to see him again. But I talked to his nurse Wanda twice and so far so good! Good night.

Thursday, May 17, 2007

Let the Weaning Begin

Today is day 2 of Bryce getting steroids. So far they seem to be working good, the docs have been able to wean him on the vent. His breaths are down to 19 (not sure of the medical term) and his rate is 19 as well. His O2 is at 50% right now but they are hoping to wean that soon too. His carbon dioxide is down in the 60's from the 80-90's, so far so good as far as that goes. Hopefully he will continue on this path and get off the vent soon. He is 920 grams today. I held him again for about 3 hours so nice! I wanted to hold him again later in the afternoon but he is only allowed to come out once a day. He is getting Vitamin E and Iron now and they increased his feeds to 17 ml every 3 hrs. Try to fatten him up! So thats about it for today, the weather sucked so I just stayed at the hospital all day... Oh I posted some new pics from today's hold. Check them out.

Wednesday, May 16, 2007

Hi Everyone,
Yesterday was a big day for Bryce, it was his first day wearing clothes!!! He looks so cute in them! Of course nothing fits but its still cute. I had to take pictures with my disposable camera because his daddy had my camera for work, but I have it back now so I will take some pictures tomorrow to post. It was a pretty quiet day yesterday, I was there most of the day, rounds were quick no big changes, just the same old talk about how Bryce has Chronic Lung Disease and that they want to try getting him off the vent. They talked about steroids as a possibility, but he has to gain more weight first. Also he got his first vaccination Hepatitis B shot. His nurse was Anne today (a primary) and she felt bad that she had to give it to him, he did cry but I contained him right after the shot so he only cried for a second. The worst part is you can't hear him cry because of the tube in his throat but you can see it.. Its so sad. :( I hate when he cries. So thats about it for yesterday.. Oh I did find out I am going back to work June 4th.. Boy does time fly! Its been a month already! The rest of the fam is well, I went to Nicole's dance observation last night they did great as always! Almost recital time....

Anyway, today I went to the hospital and it was another BIG day... Bryce has hit 2 pounds!! I never thought I'd see the day. I did get to hold him today and I got top hold him normal, you know just in my arms, and I could stare at him the whole time! It was wonderful, he did good until towards the end, he desatted a few times so we put him back thinking he just didn't want to be out, but as soon as we moved him we realized it wasn't that at all... He had pooped and he is very sensitive and he didn't want poopy pants and thats why he desatted. Once I changed him he was fine again. He had a new outfit on today its so stinking cute! He looks like a tiny old man! Love it! So in rounds today they decided its time to start steroids... This is good and bad. Its good because with his chronic lung disease it will help get him off the vent, its bad because it has many side effects, slows growth, can damage brain, can mask infection etc.... so I don;t know we'll see. Let's pray none of these happen. So for now thats it. We have some big tests coming up so please pray for him! Thanks!

Monday, May 14, 2007

Better Day Today???

So yesterday was Mothers Day and I didn't get to hold Bryce, but that's OK I got to hold him today and he did GREAT! He satted in the 90's the whole time and was happy even after we put him back. He did lose weight though 30 grams but he's still 820 which is where he ends up every time he gains and then loses. So he's basically just staying the same, they keep adding calories to his food so hopefully he start gaining soon. His nurse was Patty today she cracks me up, funny lady and sweet as can be. At the end of the day around 4:45 it was time to get Bryce ready to eat so Patty did his evaluation (which they do every three hours) and then she had me change him. Well a few minutes before all this his heart rate started to drop way low and he had white knuckles from squeezing his hands so tight, so of course I panic and think something is wrong so I call the nurse over and she says "Oh he probably just has to poop" so when it came time to change him sure enough he had a little poop in his pants..... so Patty measured his belly to see if it was distended and she told me he might still have more to go well I didn't listen and continued to change him...... I should have listened... Me, the new diaper and the bed were about to become pooped... He shot a poo stream all over me, and his bed.... I didn't think he could hold that much in him! It was pretty gross, but its very good that he goes like that because it means his belly is still working good for him, which can be an issue in preemies.. So it was worth getting it all over me, PLUS Patty (who had just gotten done telling me not to get it all over the place, sorry Patty) had to change all his bedding which meant I GOT TO HOLD HIM while she did it! So it was definitely worth it! Grama and grandpa came by to visit that was nice.... So all in all, eventhough I don't want to say it, it was pretty good day! Knock on wood......
Oh and thanks to everyone for coming to Faythe Birthday Party yesterday, it was fun and sorry for being a mental case.... I'm a little stressed out right now.

Friday, May 11, 2007

??????

So like usual I got to the hospital today about 9 am.... Bryce's oxygen was WAY up. He was at 52% from 28% BIG JUMP as far as I am concerned. Docs don't seem to concerned about it but I personally don't feel comfortable with it. But anyway Bryce did seem more calm today, he had about 2 desats while I was there which isn't horrible but like I said he was getting allot of oxygen, so really he shouldn't have been desatting at all but he was. Rounds were fine, they started him on vitamin E today, they increased his feeds to 15ml every 3 hours, they ordered and renal ultrasound, a head ultrasound and an eye exam for 2 weeks from today, keep your fingers crossed and prayers going that those all come out fine and thats about it. Quick rounds today. He did gain 40 grams today! Which is great, pray he keeps gaining. Its so funny because I noticed today what I thought was his cheeks swelling. He has these little puff balls on his cheeks, it sorta looks like he has marbles in his mouth, so of course as I always do I panicked and called his nurse over to find out why his cheeks were swollen.... Well what it is, is that when preemies finally start to gain weight it first goes to their fat bags in their cheeks.. Its so cute he has this tiny little face and then two marbles for cheeks... Its pretty funny and if you have ever seen preemies when they are older (which I have now seen allot) all of them have marble cheeks... Too cute! Of course he's cute no matter what... He did have on Brady today and one yesterday which he has never had before but again its just another one of those "preemie things". Oh for anyone who is praying for us I would like to ask that you say a little prayer for baby Jesse. He is also a 24 week preemie and he is our neighbor and he is having a bit of a tough time right now. He's a strong boy and his parents are very caring and love him very much and I hope he does well but I think some prayers would help. Thanks!
So anyway thats about it for today, I didn't hold him today because we figured maybe a day off would benefit him. Taking him in and out puts allot of stress on him so we just decided to give him a break. Hopefully tomorrow and Sunday. I won't get to see him very long on Mothers Day because we are having Faythe's Bday party that day, but I hope I will at least get to hold him for a bit that morning. We'll see, it will all depend on him! He better behave on MOTHER'S DAY! Again Thanks to everyone for posting its good therapy for me and it also saves on my cell phone bill! Love you guys!

Thursday, May 10, 2007

If it Seems Too good to be true it Probably is.....

So just as I had expected we are starting our bad days again. I knew I shouldn't have gotten my hopes up.....The day hasn't been totally horrible but we are starting a downward trend... Bryce had about 5-8 Desats and counting... They weren't going to do another blood gas until Saturday but he kept desatting and was really antsy so they checked it and he is starting to have bad gases. They decided to go up on his pressure and O's and he seems a tiny bit better but we want them to be going down not up, and they can only go up so far before the have to go back to the Hi Fi... Please pray he gets through this with out having to go to the HI Fi... all this up and down is taking its toll on me.... Right now I am trying to decide whether to go back to the hospital or not... It sucks because just when you begin to relax and think he's doing better things take a turn. The worse part is not being able to tell if he is in pain or not..Sometimes the desats can mean he is in pain but you can never tell for sure. Well anyway hopefully this is just a fluke and he'll be better tomorrow.....

Wednesday, May 9, 2007

How many has it been???

How many good days have we had???? Well today was another! I don;t even know what to say. I got to hold Bryce again today, only for an hour and a half but even 5 minutes is worth it to me. He behaved all day. Bad News is he has lost a total of 70 grams in the last three days... I'm a little concerned about this but I don't think the docs are, but good news is at rounds the docs decided he no longer needs any IV's (for now anyway) and longer needs IV nutrition SO they took out his PIC line! This is a big step because it means he is maintaining his fluid levels on his own and not dehydrating. They are adding triglycerides to his milk and one more supplement to fatten him up, in place of the IV nutrition. He is up to 13 ml. every 3 hours... (this is good seeing as he started at .5 ml) Other than that not too much to report..... He's being a very good boy, lets just pray he stays this way! (Especially when he gets older)
Also today is Bryce's big sister Faythe's 4th Birthday! Happy Birthday Faythe!
I took the girls to visit Bryce today (faythe was bored though so we only stayed about 5 minutes) So all in all it was a good day. I tried laying out in the sun again but it was WAY too hot so I just went back up to the hospital instead... I tried.

Tuesday, May 8, 2007

Another Great Day? I'm Getting Nervous

You know how the saying goes... "if it seems too good to be true, it probably is" I don't know....
Today was ANOTHER great day! Seems like this could be the calm before the storm, but hopefully not. Anyway I got to the hospital around 9 am like usual and I was praying that I would get to hold Bryce today... Well as soon as I walked in the first thing the nurse (Angie) said to me was "what time do you want to hold him?" The best 8 words anyone could have said to me. So I went pee and sat down. I started the hold at 9:15 am and was putting him back (only because it got noisy in the pod) at 12:30 pm.... It was the best hold we've had so far. He was so comfy the whole time and satting in the 90's the whole time. He never desatted or anything! It was perfect. At rounds they canceled his echo he had scheduled for tomorrow because they are pretty sure the PDA has closed! Still not getting my hopes up but for now this is great! On the not so great side Bryce has lost 40 grams in the last 2 days... He should be gaining 20-30 grams per day...could be because they have slowed down his IV nutrition and just have him on breast milk with a supplement for calories and they say sometimes during the transition they lose a bit of weight BUT he does need to start gaining fairly quick so he doesn't have to go back on high IV nutrition. Other than that things "knock on wood" seem to be OK for now.... Please keep praying for him and hopefully we will continue on the upward trend instead of down.... I have a few pictures from our visit today that I will post. Oh also since he was having a good day I left the hospital at 2 pm and laid out in the sun! (For those of you who think I spend too much time at the hospital) :)

Monday, May 7, 2007

Extubation # 2

So today started as an OK day Bryce was behaving, until right around 1pm he decided he didn't like his tube again and pulled the new one out...... Just like yesterday he changed colors and was pissed to say the least, it took a little while but they re-intubated him again for the second time in 12 hours..... This time was not as nerve racking for me because I had seen it happen once already... They tried to put it in his nose again because he seems to be happier that way but they couldn't do it so its back in his mouth. Then in rounds they decided to up his feeds by 1 ml every 12 hours and discontinue some of his other nutrients that he gets through IV's. They took out Bryce's arterial line, and when he had that in he had a board on his arm to keep it straight... WELL when they finally took the board off and the board had cut into to Bryce's arm so deep that they have to call in a plastic surgeon to decide if it needs to be stitched! I am not happy about this! It could get infected and I bet its what has been making him so uncomfortable for the past week.. Which I have been telling them! As soon as the board came off he was much better and more comfortable! Thats good at least but I feel bad he had to suffer all this time. Its bad enough with everything else thats the last thing he needed, but at least its better now. I didn't get to hold him today but hopefully tomorrow.

Sunday, May 6, 2007

With the Good Comes the Bad

So today started off as a WONDERFUL day. Bryce was way down on his oxygen, still on the conventional vent and satting very good. (high 90's) I went to rounds, they didn't have much to say because he was doing pretty good. Valve so far is still closed. All was good. Then about 12:30 it was time for me to hold him again. It took a bit longer than usual to get him to me, all his wires and tubes were tangled and messy but after a bit we managed to get him on me. He was still doing well, he stayed with me for almost 3 hours, he had his lunch on me and everything (he even pooped) so obviously he was comfy he satted at 88-95% the whole time (I again was in heaven!) THEN it was time to put him back...... Well in the process of putting him back Bryce extubated (his breathing tube came out) Big trouble at that point.... His sats went down into the 50's (which is real bad) and of course he wasn't breathing and he was changing colors very fast....I had to run to find a doc while the nurse and respiratory bagged him until the doc got there, finally the doc came they had to reintubate him which is probably the scariest thing I have ever had to witness, it felt like it took forever to get the tube back in, and this time they out it in his mouth (it was in his nose) and he doesn't love that, but after a few minutes things settled. THEN all of a sudden Bryce started satting again in the 50's for no reason, well actually the tube was too far in...... So they had to pull it out some.... Bryce was not happy to say the least! Finally things settled down, I fed him and changed him and then he went to sleep, all that stuff is very exhausting for a baby (and his mother) but in the end he seemed to be much better once they got him intubated and settled..... HOLY CRAP what a day!

Saturday, May 5, 2007

Could it Be????

Could it be?? Could we actually have had another OK day? 2 in a row?? I don't believe it! Well we did. Bryce was very well behaved today he is now back on the conventional vent and so far so good (knock on wood) His nurse today was Anne who is one of his primary's she's great to us! She let me hold him again it was awesome! This time he only lasted 1.5 hours, and he did desat 2 times but Anne said that he still did well, she said sometimes babies only last 30 minutes and then have to be put back. I of course was in heaven..... I might be able to hold him almost everyday as long as he stays on the conventional vent or better and is having a good day so keep your fingers crossed that he behaves because I NEED to hold him... He's just too cute, I can;t stand it. Other than that so far it seems like maybe his PDA has closed... BUT it can open right back up and as my luck goes.... so I am not fully convinced we're out of the woods on this one but I'm hoping and praying it stays shut! Otherwise Monday is another scary day, he has another head ultrasound, lets pray that his bleeds have not gotten bigger and that no new ones have shown up and also that the middle part of his brain is getting better not worse.... I'll keep everyone updated as I found things out!

Friday, May 4, 2007

Ask and You Shall receive.....

Well I was wondering when we were going to get a "good day" , well I guess you could say today wasn't a good day but it WAS a better day.....
So far today the docs haven't been able to hear Bryce's murmur(PDA), thats great news if it stays closed and he gets more stable.
He weighs 810 grams now 1lb. 13 oz. I believe... Everything is done in grams in the NICU so I am not 100% sure of the conversion to pounds. We had a visitor today from Pastor Cole, like always it was a pleasure seeing him. Today is the first day he has ever seen me standing up! (I've been in bed forever) Thats about all there is to report today, Bryce behaved himself so it was a pretty quiet day..... No pictures today because we didn't want to make him mad... He gets irritated by the flash and I don't know how to turn it off, and we didn't want him to start desatting from it... Maybe this weekend I can get some more.

Thursday, May 3, 2007

When will another good day come???

So Its been a few days since I have updated and thats because we have been having a few not so great days. Bryce is still on the Hi Fi and on high settings. He had a pretty bad night last night, they had to change out his breathing tube because they thought maybe it was clogged and thats why he was not satting well, but that wasn't it..... He still desatted a few times after that. He had an OK day today but by the end of the day he started acting up again.... Hopefully though he will have a good night tonight. Good news today though Bryce and I both found out we DO NOT have MRSA which is very good! Some possible bad news too though, seems like if Bryce's PDA doesn't close by the end of the week we will be transferred to Boston Childrens Hospital to have the surgery.... I guess there is no Cardiac Surgeon on at Memorial until next Thursday and Bryce may not be able to wait that long. Please pray that it closes because I don't think I can handle going to Boston! Thanks again to everyone who has looked at this site and posted to it. It helps allot knowing everyone is there for us and I enjoy reading the comments! Keep'em coming! I will hopefully have some good news tomorrow!

Tuesday, May 1, 2007

The Honeymoon is Over

So as they say in the NICU the "Honeymoon" is over.... Bryce had yet another bad day today. They ended up putting him back on the Hi Fi Oscillator with VERY high settings which we didn't want to happen. Seems though that all of this is related to the PDA which is basically flooding his lungs with blood. Today is day 2 of the third course of Neoprofen (used to try to close the open valve) and it is still not working. The murmur is still very loud which probably means its still wide open. On a good note though he was sucking on his pacifier today during one of his gavage feedings which is good because it will teach him that when he sucks he ends up with a full belly... So when its finally bottle time he'll know what to do with it, or at least have an idea. He's just the cutest! I am on my way back to the hospital since he's having a bad day its harder not to be up there with him all day and night. This girls are staying at grama and grampa's house tonight so they will be well taken care of which helps me not to have to worry! Thanks to everyone who is praying for Bryce please keep it up as long as you can and as much as you can its all we have right now. Also keep posting comments here its nice to read after a long day in the hospital! Also I have posted a new picture of Bryce from today, hope everyone enjoys!

Go Patriots!!!

Go Patriots!!!
Finally Football season!


Cute

Look at my muscles!

Look at my muscles!

No Oxygen!

No Oxygen!
So who does he look like????

VAPO THERM!!!!! Yipee!!!

VAPO THERM!!!!! Yipee!!!
Look at me I'm on VapoTherm now! You can see my fat cheeks!

July 5, 2007

July 5, 2007
First day no oxygen...

Apnea study

Apnea study
On Monday 7/2/07We participated in an Apnea study for UMass Medical School, it is a study to try to prevent apnea in preemies.


Colee holding Bryce

Faythe Holding Bryce

We're home!

Fist time trying out the carseat before going home

Cute!

Cute!



Daddy and Bryce

Daddy and Bryce
Finally I remembered to take a picture!

Sleeping...

Sleeping...

Just to get an idea of how small Bryce is, that is my hand and its almost twice the size of him. This pic is from last week.

2lbs. 11.6oz.

Coming out for my first tubbie!

Coming out for my first tubbie!

My first Tubbie

My first Tubbie
Anne (bryce's nurse) Putting him in the tubbie for the first time

The Mommy Massage!

The Mommy Massage!
Ahhh... This is the life!

Mmmm... Fingers!

Mohawk!!!!

Mohawk!!!!
Anne not only gave Bryce his first tubby, but she also gave him his first Mohawk!

I'm only the cutest baby EVER!

I'm only the cutest baby EVER!

Mad??? What gave you that idea?

Mad??? What gave you that idea?

Peek-A-Boo

Peek-A-Boo
So in this game what comes after you put your hands over your eyes???

Bryce trying to pull out his breathing tube

Bryce trying to pull out his breathing tube
Is this thing really NECESSARY??

Bryce holding onto a toy instead of his breathing tube and pulling it out!

Mom pretty sure you should have someone else take the picture and not try to do it yourself!

Just Me and My Mom!

Just Me and My Mom!
May 8, 2007

Even on bad days I'm still so Cute!

Please NO MORE PICTURES!

Please NO MORE PICTURES!
Would you stop with the camera already!

Clean blankets, clean bum what more can a boy ask for??

Boy am I tired!

Boy am I tired!

Changing my Bed

Changing my Bed
Mom gets to pick me up while my nurse changes my bed

Happy Birthday Mommy!

Happy Birthday Mommy!
First time I ever got to hold Bryce

Best birthday gift a mom could have aked for.