Lilypie 2nd Birthday Ticker
Lilypie 2nd Birthday Ticker

Friday, November 30, 2007

No News is good News???

Well "knock on wood" things have been pretty quiet around here. I finally had a WHOLE week with no kids having to go to the doctors!!! It was like a vaca. But of course we can't be completely doctor free, I of course was in Monday having a million tests done... Oh well maybe Doc free next week?


Anyway Bryce has been reaching for things now, and when he gets ahold of whatever it is he gets excited and lets it go, but we're working on that. Shocking as this may sound I have no idea what he weighs right now.... We haven't been to the docs in a while so he hasn't been weighed, by the feel of him though I'm guessing 13lbs. 1 oz??? We'll see. I have a couple of pics to post, I have run out of card space on my camera and I can't bring myself to delete any that are on it, eventhough they are all downloaded.... so until I get some guts I won't be able to take anymore... I have to get some guts soon!


Sleep study is scheduled for Decemeber 12 - 13 at Childrens in Boston. I hope we get some answers from it. He is sleeping better but still not great and still chokes allot. Well thats about it for now so far so good, lets hope it stays this way with everyone!




Here are some pictures ENJOY!



HOw Cute! (except for the RED Eyes!)



Friday, November 16, 2007

Lots of New Stuff

OK so heres whats been happening:

Weight: 12lbs. 1.2oz.
Length: 23.75 Inches

Cardiology Appt: Did Echo, EKG and blood pressure.
Echo shows Pulmonary Hypertension, whch he has had for a while now
EKG looks normal
Blood Pressure: High. 80/65

ENT Appt:
has Laryngomalaysia which is why he breaths so loudly.
Will do Bronchoscopy in January to be sure no lesions.

Pedi Appt:
Had Synagis and flu shot.

Pulmonology Appt:
Stay on 300cc's O2 until further notice.
Will do a sleep study in Boston Childrens Hospital due to severe snoring and lack of sleep, rule out sleep apnea,m see what else is causing hyperness and snoring.
Checked blood pressure again 81/63 still too high, will follow for a few months and go from there.

Opthamology Appt:
Eyes Look good so far, will dilate next time for further study.

EI:
Doing OK, head control still not great, but is starting to roll onto his side, I'm still wondering if there isn't more to his developmental delays, but we'll see.

But overall doing well. Per Pulm. need to make some changes for the winter, need to limit visitors, and exposure to any germs.
Still don't have any nursing which is frustrating his Pulm says he can't understand why we aren't getting any help and has decided to email head of nursing co. and request help... We'll see! As of right now the only help I get aside from family is starting next week a volunteer will come to my house for an hour/per week to hold Bryce for me to give me a break. At this point I will take what i can get....... He's allot of work!

Go Patriots!!!

Go Patriots!!!
Finally Football season!


Cute

Look at my muscles!

Look at my muscles!

No Oxygen!

No Oxygen!
So who does he look like????

VAPO THERM!!!!! Yipee!!!

VAPO THERM!!!!! Yipee!!!
Look at me I'm on VapoTherm now! You can see my fat cheeks!

July 5, 2007

July 5, 2007
First day no oxygen...

Apnea study

Apnea study
On Monday 7/2/07We participated in an Apnea study for UMass Medical School, it is a study to try to prevent apnea in preemies.


Colee holding Bryce

Faythe Holding Bryce

We're home!

Fist time trying out the carseat before going home

Cute!

Cute!



Daddy and Bryce

Daddy and Bryce
Finally I remembered to take a picture!

Sleeping...

Sleeping...

Just to get an idea of how small Bryce is, that is my hand and its almost twice the size of him. This pic is from last week.

2lbs. 11.6oz.

Coming out for my first tubbie!

Coming out for my first tubbie!

My first Tubbie

My first Tubbie
Anne (bryce's nurse) Putting him in the tubbie for the first time

The Mommy Massage!

The Mommy Massage!
Ahhh... This is the life!

Mmmm... Fingers!

Mohawk!!!!

Mohawk!!!!
Anne not only gave Bryce his first tubby, but she also gave him his first Mohawk!

I'm only the cutest baby EVER!

I'm only the cutest baby EVER!

Mad??? What gave you that idea?

Mad??? What gave you that idea?

Peek-A-Boo

Peek-A-Boo
So in this game what comes after you put your hands over your eyes???

Bryce trying to pull out his breathing tube

Bryce trying to pull out his breathing tube
Is this thing really NECESSARY??

Bryce holding onto a toy instead of his breathing tube and pulling it out!

Mom pretty sure you should have someone else take the picture and not try to do it yourself!

Just Me and My Mom!

Just Me and My Mom!
May 8, 2007

Even on bad days I'm still so Cute!

Please NO MORE PICTURES!

Please NO MORE PICTURES!
Would you stop with the camera already!

Clean blankets, clean bum what more can a boy ask for??

Boy am I tired!

Boy am I tired!

Changing my Bed

Changing my Bed
Mom gets to pick me up while my nurse changes my bed

Happy Birthday Mommy!

Happy Birthday Mommy!
First time I ever got to hold Bryce

Best birthday gift a mom could have aked for.