Lilypie 2nd Birthday Ticker
Lilypie 2nd Birthday Ticker

Monday, April 30, 2007

One of Those Days

So its day 15 of Bryce's life. We got the test results I was worried about and it seems they are not as good as I was hoping. Bryce's PDA (open valve) in his heart has not closed like we had hoped. They are going to try one more round of medication and if this doesn't work the he will have to have surgery and that could be as early as next Monday.... Also his head ultrasound was not great either. The bleed on the left side of his brain that he has had since birth IS starting to go away a little BUT now he has ANOTHER bleed on the right side of his brain which is not good. This is something they will continue to watch, so for right now they aren't doing anything about it but watching. He will have another scan done on Monday. I guess right now all we can do is pray. On a good note he did have a decent day, only 2 Desats not bad for a preemie, and his O2 level is still about the same which is good that it didn't have to go up. The same or down is good. Also because Bryce is behaving for the time being the docs haven't had to sedate him lately which is another good thing because babies can get addicted to that stuff, so we don;t want him sedated as much as possible. So for anyone who is willing all we ask is that you keep praying for him, it seems to be the only thing getting us through right now. Thanks!

Sunday, April 29, 2007

The first 2 weeks

So today is day 14 for Bryce. This is a huge accomplishment for us. We never thought we'd get this far.
So far it has been an incredible ride. Everyday is something new. Either Bryce is having a good day or a bad day. We have had an equal amount of both. He's gone from really bad to really good to really bad again...... Right now we are kind of in between. He is on the conventional vent which is better than the HI-Fi, but he is on very high settings and could go back on the Hi-Fi at any moment. Lets keep our fingers crossed that he will stay on the conventional or even better will go the next step which I believe is CPAP... We'll see. He also has a few other "issues" that I am hoping will turn into nothing. Tomorrow is going to be a pretty stressful day for me, Bryce is having another head ultrasound (3rd one) to follow some "areas" that are not perfect in his brain and he is also having another echo (3rd one also) to follow up on his heart defects and to see if his PDA has closed... Pray that these tests come back clear.
I am going to post some pictures and try to keep them updated so everyone can see him... As you will see is the most handsome boy I know. (I'm a little partial)

Go Patriots!!!

Go Patriots!!!
Finally Football season!


Cute

Look at my muscles!

Look at my muscles!

No Oxygen!

No Oxygen!
So who does he look like????

VAPO THERM!!!!! Yipee!!!

VAPO THERM!!!!! Yipee!!!
Look at me I'm on VapoTherm now! You can see my fat cheeks!

July 5, 2007

July 5, 2007
First day no oxygen...

Apnea study

Apnea study
On Monday 7/2/07We participated in an Apnea study for UMass Medical School, it is a study to try to prevent apnea in preemies.


Colee holding Bryce

Faythe Holding Bryce

We're home!

Fist time trying out the carseat before going home

Cute!

Cute!



Daddy and Bryce

Daddy and Bryce
Finally I remembered to take a picture!

Sleeping...

Sleeping...

Just to get an idea of how small Bryce is, that is my hand and its almost twice the size of him. This pic is from last week.

2lbs. 11.6oz.

Coming out for my first tubbie!

Coming out for my first tubbie!

My first Tubbie

My first Tubbie
Anne (bryce's nurse) Putting him in the tubbie for the first time

The Mommy Massage!

The Mommy Massage!
Ahhh... This is the life!

Mmmm... Fingers!

Mohawk!!!!

Mohawk!!!!
Anne not only gave Bryce his first tubby, but she also gave him his first Mohawk!

I'm only the cutest baby EVER!

I'm only the cutest baby EVER!

Mad??? What gave you that idea?

Mad??? What gave you that idea?

Peek-A-Boo

Peek-A-Boo
So in this game what comes after you put your hands over your eyes???

Bryce trying to pull out his breathing tube

Bryce trying to pull out his breathing tube
Is this thing really NECESSARY??

Bryce holding onto a toy instead of his breathing tube and pulling it out!

Mom pretty sure you should have someone else take the picture and not try to do it yourself!

Just Me and My Mom!

Just Me and My Mom!
May 8, 2007

Even on bad days I'm still so Cute!

Please NO MORE PICTURES!

Please NO MORE PICTURES!
Would you stop with the camera already!

Clean blankets, clean bum what more can a boy ask for??

Boy am I tired!

Boy am I tired!

Changing my Bed

Changing my Bed
Mom gets to pick me up while my nurse changes my bed

Happy Birthday Mommy!

Happy Birthday Mommy!
First time I ever got to hold Bryce

Best birthday gift a mom could have aked for.