Monday, April 30, 2007
One of Those Days
So its day 15 of Bryce's life. We got the test results I was worried about and it seems they are not as good as I was hoping. Bryce's PDA (open valve) in his heart has not closed like we had hoped. They are going to try one more round of medication and if this doesn't work the he will have to have surgery and that could be as early as next Monday.... Also his head ultrasound was not great either. The bleed on the left side of his brain that he has had since birth IS starting to go away a little BUT now he has ANOTHER bleed on the right side of his brain which is not good. This is something they will continue to watch, so for right now they aren't doing anything about it but watching. He will have another scan done on Monday. I guess right now all we can do is pray. On a good note he did have a decent day, only 2 Desats not bad for a preemie, and his O2 level is still about the same which is good that it didn't have to go up. The same or down is good. Also because Bryce is behaving for the time being the docs haven't had to sedate him lately which is another good thing because babies can get addicted to that stuff, so we don;t want him sedated as much as possible. So for anyone who is willing all we ask is that you keep praying for him, it seems to be the only thing getting us through right now. Thanks!
Sunday, April 29, 2007
The first 2 weeks
So today is day 14 for Bryce. This is a huge accomplishment for us. We never thought we'd get this far.
So far it has been an incredible ride. Everyday is something new. Either Bryce is having a good day or a bad day. We have had an equal amount of both. He's gone from really bad to really good to really bad again...... Right now we are kind of in between. He is on the conventional vent which is better than the HI-Fi, but he is on very high settings and could go back on the Hi-Fi at any moment. Lets keep our fingers crossed that he will stay on the conventional or even better will go the next step which I believe is CPAP... We'll see. He also has a few other "issues" that I am hoping will turn into nothing. Tomorrow is going to be a pretty stressful day for me, Bryce is having another head ultrasound (3rd one) to follow some "areas" that are not perfect in his brain and he is also having another echo (3rd one also) to follow up on his heart defects and to see if his PDA has closed... Pray that these tests come back clear.
I am going to post some pictures and try to keep them updated so everyone can see him... As you will see is the most handsome boy I know. (I'm a little partial)
So far it has been an incredible ride. Everyday is something new. Either Bryce is having a good day or a bad day. We have had an equal amount of both. He's gone from really bad to really good to really bad again...... Right now we are kind of in between. He is on the conventional vent which is better than the HI-Fi, but he is on very high settings and could go back on the Hi-Fi at any moment. Lets keep our fingers crossed that he will stay on the conventional or even better will go the next step which I believe is CPAP... We'll see. He also has a few other "issues" that I am hoping will turn into nothing. Tomorrow is going to be a pretty stressful day for me, Bryce is having another head ultrasound (3rd one) to follow some "areas" that are not perfect in his brain and he is also having another echo (3rd one also) to follow up on his heart defects and to see if his PDA has closed... Pray that these tests come back clear.
I am going to post some pictures and try to keep them updated so everyone can see him... As you will see is the most handsome boy I know. (I'm a little partial)
Subscribe to:
Posts (Atom)