Surgery Tomorrow and Finally he has a Tooth!

So tomorrow is the big day. We have to be in Boston for 7:45 am. I don't know what time his surgery is at but I do know he can't have anything to eat after midnight! Fun ride to Boston that oughtta be.

For those who don't know, Bryce is going in for a few minor procedures tomorrow but because of his lungs and his heart its a bit more dangerous for him than the average kid.
We went to Mass Eye and Ear last week and met with some great doctors. We were there ALL day but it was worth it. They are doing the following tomorrow:

ENT doc - Tubes in ears, possible adenoidectomy, Bronchoscopy (for his strider & Laryngomalacia))

GI - Endoscopy (to be sure his severe reflux isn't affecting his airway)

Pulmonary - Echo while he is sedated to measure his pulmonary hypertension and see what is causing his murmur.

Not really sure how long all this will take but I am a little nervous. He only had ROP laser treatment before and was only sedated for that not actually under general so I am worried about how he will do with that..... We will be staying overnight either at MEEI or Mass General depending on how he does in the surgery. Keep him in your thoughts and prayers please.


And yes he finally broke his first tooth through yesterday! Can't really see it yet but you sure can feel it!

Crazy Around here

Here's whats been going on:

Bryce is 14lbs 6oz.

Sleeping better "knock on wood"

We went to Children's Hospital last week for his sleep study, thats was pretty painful, but he was a trooper. Once all the equipment was finally put on he was MUCH better. He was NOT happy, but hopefully it will answer allot of questions. We should have the results soon. Heres what it looked like. Poor Baby! Glad its done though!

Also Bryce is sick AGAIN! We had to go to his pulmonologist Monday because he had a fever, and was having trouble breathing. He is now on Albuterol and Orapred. Then on Tuesday he had to get his Synagis shot so we went to pedi, while we were there they checked his ears and of course he has another ear infection. This is ear infection #5 in 3 months, SO we have now been referred to Mass Eye and Ear for tubes. This surgery isn't normally a big deal but Bryce does not do well with anesthesia AT ALL! The last time he was put under he ended up in ICU, they could not wake him, so they had to reverse the medication after about 4 hours of him not waking up. He had LOT of trouble breathing etc... So needless to say I am not looking forward to this surgery at all! But on the same hand it needs to be done because he gets SO sick when he gets an ear infection and is in so much pain all the time that it has to be done!They will also do his bronchoscopy at the same time. We go Tuesday to Mass Eye & Ear to get our surgery date.


In other news Faythe and Nicole are good, both in school and doing well. Great big sisters and very patient with me and Bryce through all of this.


Nicole has become obsessed with Guitar Hero (Steve too). She also played it with my dad once and he loved it so much he went right out and bought it!

Faythe thinks she's playing too! I am still trying to get a picture if Steve playing but haven't been able to yet....

So thats all for now!

Oh Stephanie and Shannon, I haven't been online in a while an noticed you guys went private, I would love to be able to still follow the kids, let me know what I need to do. Hope all is well with you guys!