No News is good News???

Well "knock on wood" things have been pretty quiet around here. I finally had a WHOLE week with no kids having to go to the doctors!!! It was like a vaca. But of course we can't be completely doctor free, I of course was in Monday having a million tests done... Oh well maybe Doc free next week?

Anyway Bryce has been reaching for things now, and when he gets ahold of whatever it is he gets excited and lets it go, but we're working on that. Shocking as this may sound I have no idea what he weighs right now.... We haven't been to the docs in a while so he hasn't been weighed, by the feel of him though I'm guessing 13lbs. 1 oz??? We'll see. I have a couple of pics to post, I have run out of card space on my camera and I can't bring myself to delete any that are on it, eventhough they are all downloaded.... so until I get some guts I won't be able to take anymore... I have to get some guts soon!

Sleep study is scheduled for Decemeber 12 - 13 at Childrens in Boston. I hope we get some answers from it. He is sleeping better but still not great and still chokes allot. Well thats about it for now so far so good, lets hope it stays this way with everyone!

Here are some pictures ENJOY!

HOw Cute! (except for the RED Eyes!)

Lots of New Stuff

OK so heres whats been happening:

Weight: 12lbs. 1.2oz.
Length: 23.75 Inches

Cardiology Appt: Did Echo, EKG and blood pressure.
Echo shows Pulmonary Hypertension, whch he has had for a while now
EKG looks normal
Blood Pressure: High. 80/65

ENT Appt:
has Laryngomalaysia which is why he breaths so loudly.
Will do Bronchoscopy in January to be sure no lesions.

Pedi Appt:
Had Synagis and flu shot.

Pulmonology Appt:
Stay on 300cc's O2 until further notice.
Will do a sleep study in Boston Childrens Hospital due to severe snoring and lack of sleep, rule out sleep apnea,m see what else is causing hyperness and snoring.
Checked blood pressure again 81/63 still too high, will follow for a few months and go from there.

Opthamology Appt:
Eyes Look good so far, will dilate next time for further study.

EI:
Doing OK, head control still not great, but is starting to roll onto his side, I'm still wondering if there isn't more to his developmental delays, but we'll see.

But overall doing well. Per Pulm. need to make some changes for the winter, need to limit visitors, and exposure to any germs.
Still don't have any nursing which is frustrating his Pulm says he can't understand why we aren't getting any help and has decided to email head of nursing co. and request help... We'll see! As of right now the only help I get aside from family is starting next week a volunteer will come to my house for an hour/per week to hold Bryce for me to give me a break. At this point I will take what i can get....... He's allot of work!