Bryce is 14lbs 6oz.
Sleeping better "knock on wood"
We went to Children's Hospital last week for his sleep study, thats was pretty painful, but he was a trooper. Once all the equipment was finally put on he was MUCH better. He was NOT happy, but hopefully it will answer allot of questions. We should have the results soon. Heres what it looked like. Poor Baby! Glad its done though!
Also Bryce is sick AGAIN! We had to go to his pulmonologist Monday because he had a fever, and was having trouble breathing. He is now on Albuterol and Orapred. Then on Tuesday he had to get his Synagis shot so we went to pedi, while we were there they checked his ears and of course he has another ear infection. This is ear infection #5 in 3 months, SO we have now been referred to Mass Eye and Ear for tubes. This surgery isn't normally a big deal but Bryce does not do well with anesthesia AT ALL! The last time he was put under he ended up in ICU, they could not wake him, so they had to reverse the medication after about 4 hours of him not waking up. He had LOT of trouble breathing etc... So needless to say I am not looking forward to this surgery at all! But on the same hand it needs to be done because he gets SO sick when he gets an ear infection and is in so much pain all the time that it has to be done!They will also do his bronchoscopy at the same time. We go Tuesday to Mass Eye & Ear to get our surgery date.
In other news Faythe and Nicole are good, both in school and doing well. Great big sisters and very patient with me and Bryce through all of this.
Nicole has become obsessed with Guitar Hero (Steve too). She also played it with my dad once and he loved it so much he went right out and bought it!
Faythe thinks she's playing too! I am still trying to get a picture if Steve playing but haven't been able to yet....
So thats all for now!
Oh Stephanie and Shannon, I haven't been online in a while an noticed you guys went private, I would love to be able to still follow the kids, let me know what I need to do. Hope all is well with you guys!
4 comments:
Good luck next week. Maybe he will sleep better once this is done. Glad that the girls and your father are having fun with Guitar Hero. I know that my two have fun playing it when their friend Joe comes over. I cannot believe how much he has grown. I will, hopefully get a chance to see him in person some day with Gram. I gave her a copy of your post from the other day. I, too, am glad that she is around to help. She has helped me in the past also.I miss working with her as often as I have in the past. She does give me updates when she comes in.
Sandie
Erica, I am a friend of nen nen's. I am her next door neighbor at school, Natalie. I am at school now typing some reports using her computer so I decided to try to get onto Bryce's website.I thought it was blocked at school but I got on. It is always fun to see the pictures and it is amazing how much he has grown and of course how cute he is! Anyways, I was reading your blog about the visit to Boston and the lady telling you about drug babies. You have every right to be very pissed because it was really none of her business. I don't think that she was implying that he was a drug baby. Sometimes when people say things to they really don't engage their brain and their crassness comes out. I wish that she could know about all of the things that you have done to better his life as well as for other premies such as the sleep apnea study and speaking for the March of Dimes. I have heard many of the stories of his middle of the night ER visits and how many days you have gone with practically no sleep. Also, you are still maintaining as much normalcy for Faythe and Nicole as possible and are still providing them with special time with you. I would like to talk to that Bitch! So there!Anyways, there are many people at school who are constantly asking Nancy how all of you are doing. I guess you could say that he has a lot of honorary aunties that are praying for all of you.Natalie
Hey there..
You're going through what we have gone through, and MEEI is great esp Dr. H. We go back Feb 5th for a follow up for Seren'a paralyzed vocal cord. Let us know how it goes.
Just email me your email address and I'll send you an invite to view our blog. I'll forward your email address to Shannon so she can email you an invitation too.
rapa.stephanie@gmail.com
Hey there - I'm so happy that you have kept up with Bryce's blog. It's a miracle to look back at some of the older pictures and then look at his most recent pictures. He is such a cute baby!! Your doing all the right things for him and in the end it should only help him live a happier life. I miss him and of course the girls so much -- hope that I get to see you soon.
Alicia
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