Lilypie 2nd Birthday Ticker
Lilypie 2nd Birthday Ticker

Tuesday, May 1, 2007

The Honeymoon is Over

So as they say in the NICU the "Honeymoon" is over.... Bryce had yet another bad day today. They ended up putting him back on the Hi Fi Oscillator with VERY high settings which we didn't want to happen. Seems though that all of this is related to the PDA which is basically flooding his lungs with blood. Today is day 2 of the third course of Neoprofen (used to try to close the open valve) and it is still not working. The murmur is still very loud which probably means its still wide open. On a good note though he was sucking on his pacifier today during one of his gavage feedings which is good because it will teach him that when he sucks he ends up with a full belly... So when its finally bottle time he'll know what to do with it, or at least have an idea. He's just the cutest! I am on my way back to the hospital since he's having a bad day its harder not to be up there with him all day and night. This girls are staying at grama and grampa's house tonight so they will be well taken care of which helps me not to have to worry! Thanks to everyone who is praying for Bryce please keep it up as long as you can and as much as you can its all we have right now. Also keep posting comments here its nice to read after a long day in the hospital! Also I have posted a new picture of Bryce from today, hope everyone enjoys!

8 comments:

Alicia said...

Steve, Erika, Nicole and Faythe,
Congratulations on your newest bambino. He's a strong little man and absolutely beautiful. We think of you often and we're here for anything you may need.
Take care,
Marc, Alicia and Austin

Amberfitz said...

HI guys, Congratulations on your new little man. I was so glad to find out about this site to keep up to date with little Bryce and finally put a face to all our prayers. You are all incredibly strong and all your postive thoughts and actions will help Bryce pull through. Call us if you need anything...301-616-7819. I am an RN in a level 4 NICU so if you have any questions...please feel free to give me a call. All our thoughts and prayers are with you.

Love, Amber and Steve

Lorinda said...

Hi Erika, Steve, Nicole & Faythe,

I work with Steve's Mom, Nancy, and I have been so touched by little Bryce's story! He is truly a 'miracle baby'. What a beautiful little guy!

I wanted to let you know that we have added Bryce (and your family) to our church prayer list. We believe in a God of miracles and we are trusting Him to do wonderful things for Bryce!

Be assured that as much as you love Bryce, God loves him even more and is holding in him in His loving and protective arms.

With love & prayers~
Lorinda, Gary, Sara & Patrick

Auntie Mari said...

Steve, Erika, Nicole, Faythe and Bryce.

We are thinking of all of you every day and we want you to know how much we love you. Our baby boy is beautiful and we love him. Keep faith and stay strong!!

We love you,

Auntie Mari, Uncle Bob and the girls

Karen said...

Erika & Steve, I work w/Mari @ADT and just wanted to let you know that your all in our prayers. Just got the first site of your new son. WOW!! How beautiful but you know that already. Just wanted to share a litte note w/ you. I have a neice that was born @ 26 weeks and @ 1 lb 9oz @ Baystate Medical Hospital and today she is 27 year old and has two boys of her own. She had a very long and hard climb to get there just as your son does but Miracles do happen. Keep up the faith and my family will keep you and your family in our prayers.

Unknown said...

Hey Erika,

I just wanted to say it was so good to finally get to see the baby, He is beautiful and i can't wait to see him again. Hope everything is going alright. I love you guys and i'll see you soon.

Love your favorite cousin,
Danielle

Unknown said...

Steve, Erika, Nicole and Faythe,
I am a friend of Lorinda's who works with Steve's Mom, Nancy and she shared with us last night at our church about your family's story.
Please know you all are in our thoughts and prayers even though we have never met. Our God is able to perform miracles and we are in awe of your beautiful son and pray for God's continued protection and strength on him and your entire family.
Thinking of you all and holding up in our prayers,
Tim, Stacey,
Kyle, Ben and Matthew

coley said...

hi mom i just wanted to say something since u probably wouldnt tell me in person.............can i have a raise in mii alowance?............just kidding!!!

what i really wanted to say was i hope baby brycen (or wut kimmy burkhart say:bison)is ok!! i just cant wait till he comes home and he can enjoy the company of his family at home with us all and not at the hopsicle attached to all these wires and tubes down his throat!!! well i just wanted to make shur he was ok!!!!
luv ya

ur fav daughter,
*~coley~*

Go Patriots!!!

Go Patriots!!!
Finally Football season!


Cute

Look at my muscles!

Look at my muscles!

No Oxygen!

No Oxygen!
So who does he look like????

VAPO THERM!!!!! Yipee!!!

VAPO THERM!!!!! Yipee!!!
Look at me I'm on VapoTherm now! You can see my fat cheeks!

July 5, 2007

July 5, 2007
First day no oxygen...

Apnea study

Apnea study
On Monday 7/2/07We participated in an Apnea study for UMass Medical School, it is a study to try to prevent apnea in preemies.


Colee holding Bryce

Faythe Holding Bryce

We're home!

Fist time trying out the carseat before going home

Cute!

Cute!



Daddy and Bryce

Daddy and Bryce
Finally I remembered to take a picture!

Sleeping...

Sleeping...

Just to get an idea of how small Bryce is, that is my hand and its almost twice the size of him. This pic is from last week.

2lbs. 11.6oz.

Coming out for my first tubbie!

Coming out for my first tubbie!

My first Tubbie

My first Tubbie
Anne (bryce's nurse) Putting him in the tubbie for the first time

The Mommy Massage!

The Mommy Massage!
Ahhh... This is the life!

Mmmm... Fingers!

Mohawk!!!!

Mohawk!!!!
Anne not only gave Bryce his first tubby, but she also gave him his first Mohawk!

I'm only the cutest baby EVER!

I'm only the cutest baby EVER!

Mad??? What gave you that idea?

Mad??? What gave you that idea?

Peek-A-Boo

Peek-A-Boo
So in this game what comes after you put your hands over your eyes???

Bryce trying to pull out his breathing tube

Bryce trying to pull out his breathing tube
Is this thing really NECESSARY??

Bryce holding onto a toy instead of his breathing tube and pulling it out!

Mom pretty sure you should have someone else take the picture and not try to do it yourself!

Just Me and My Mom!

Just Me and My Mom!
May 8, 2007

Even on bad days I'm still so Cute!

Please NO MORE PICTURES!

Please NO MORE PICTURES!
Would you stop with the camera already!

Clean blankets, clean bum what more can a boy ask for??

Boy am I tired!

Boy am I tired!

Changing my Bed

Changing my Bed
Mom gets to pick me up while my nurse changes my bed

Happy Birthday Mommy!

Happy Birthday Mommy!
First time I ever got to hold Bryce

Best birthday gift a mom could have aked for.