If it Seems Too good to be true it Probably is.....

So just as I had expected we are starting our bad days again. I knew I shouldn't have gotten my hopes up.....The day hasn't been totally horrible but we are starting a downward trend... Bryce had about 5-8 Desats and counting... They weren't going to do another blood gas until Saturday but he kept desatting and was really antsy so they checked it and he is starting to have bad gases. They decided to go up on his pressure and O's and he seems a tiny bit better but we want them to be going down not up, and they can only go up so far before the have to go back to the Hi Fi... Please pray he gets through this with out having to go to the HI Fi... all this up and down is taking its toll on me.... Right now I am trying to decide whether to go back to the hospital or not... It sucks because just when you begin to relax and think he's doing better things take a turn. The worse part is not being able to tell if he is in pain or not..Sometimes the desats can mean he is in pain but you can never tell for sure. Well anyway hopefully this is just a fluke and he'll be better tomorrow.....