We got the GO AHEAD!!!!!!!

FINALLY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Today we went to pulmonary for our follow up.... We were told that as of June 15 we can start weaning his O2!!!! I can't believe it! So as long as this sinus infection is gone and he is feeling well we can start by dropping him by 50cc's for two weeks, another 50 for another two weeks etc.. until we get to 100 cc's so since he is at 300 cc's right now this should take a few months to get to 100. And only as long as all goes well with the wean. Pulm said he is being very aggressive with the wean to see how Bryce does. If he doesn't tolerate it well we will have to slow it down but we'll see.

THEN once we are at 100cc's we will stay there for a few months to give him a break. Then Dr. K said we can start having "time off" and see how he does with that... This is such huge news for us so keep your fingers crossed he handles it well.... YIPPEEEEEE!!!!!!!