So not too much to report..... Thats why I haven't been updating lately. Nicole and Faythe are in school. Faythe has done great with her first real school year with the exceptions of a few bus mishaps... and she loves it so far! Dance starts this week. 9 classes for Nicole and Faythe is going to give it a shot again.. We'll see how it goes!
Bryce is now 21 lbs. I forgot his length but he is in the less than 5th percentile for his weight, 30 percentile for his height and 50th for his head! HOLY COW! Big head means big brains! He is doing well we are now giving him 1 hour/day off of his oxygen. But now that he has felt freedom he DOES NOT want it on at all! I can't wait until its gone for good! We went to have his eyes checked today, he is beginning to have a lazy eye and still has astigmatism so we go back in a month to possibly fit for glasses.. How cute!! He is still COMPLETELY refusing to walk. His ankles turn in and he "W" sits WAY too MUCH! So we are keeping a very close eye on all of this he will probably end up with AFO's at some point but we are going to wait a bit until we figure out why he won't walk. Another issue he has is a texture aversion on his feet so that is causing problems with walking as well, he doesn't like his feet on the ground at all anywhere so PT recommends we keep shoes on him as often as possible, so I am doing my best with that too, but he hates shoes......
I have been pretty sick lately which is another reason I haven't been updating,... I just had a few biopsies done on my stomach and am waiting for the results.... I have lost 10 lbs in 5 weeks with out trying.... and feel really crappy some days. Hopefully its nothing. They did however find a "pretty Good" ulcer while doing the endoscopy so I am sure that isn't helping the way I feel if not causing it so we;ll see.
Unfortunately no pics, I have been REALLY bad with that lately.....
Monday, September 15, 2008
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3 comments:
Glad to see that the children are feeling better. You had a rough summer. It is no wonder you haven't been feeling well. I hope everything turns out okay. I was glad that you updated. I have been checking at least once a week to see how everyone has been doing. I can't believe Faythe is in school. It seems like yesterday that she was sitting in her carseat at JB. Good luck with everything and as always, don't forget to smile. You are truly an amazing mom.
Sandie
so glad to see you post again. and, wow, without oxygen for an hour a day. he has to be thrilled!!! sofia doesnt' do the texture deal with her face or feet either, so we are doign some brushing and compressions in OT and it has really helped out.
prayers to you for health and strength as you wait for your biopsies. scary, i know. post pics when you get them...would love to see an update.
So glad to read a post!
I hope everything is ok healthwise with you!
I know how it feels to have a kiddo who w sits too much...try all the time unless he is placed in sitting by us! Bryce will get there though.
I saw your aunt today. I have a client who had a baby who is in the NICU and I went to visit with her today. I am bringing the kids Saturday afternoon for a visit. You should come!
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