He DID IT!! He FINALLY DID IT! And I didn't have the video camera.....

YUP thats right he crawled about 3 feet all by himself!!!!! He wanted to get to a ball and HE DID IT!!!! I'm so proud of him!!! He's such a big boy!

We got the GO AHEAD!!!!!!!

FINALLY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Today we went to pulmonary for our follow up.... We were told that as of June 15 we can start weaning his O2!!!! I can't believe it! So as long as this sinus infection is gone and he is feeling well we can start by dropping him by 50cc's for two weeks, another 50 for another two weeks etc.. until we get to 100 cc's so since he is at 300 cc's right now this should take a few months to get to 100. And only as long as all goes well with the wean. Pulm said he is being very aggressive with the wean to see how Bryce does. If he doesn't tolerate it well we will have to slow it down but we'll see.

THEN once we are at 100cc's we will stay there for a few months to give him a break. Then Dr. K said we can start having "time off" and see how he does with that... This is such huge news for us so keep your fingers crossed he handles it well.... YIPPEEEEEE!!!!!!!

Made it through the WHOLE winter......

Yep, we had a pretty uneventful winter as far as Bryce being sick. He had a few ear infections and colds/flus, but not anything like I thought would happen. So don't you know the nice weather hits, flu/RSV season are pretty much over and he is sick as a dog!

101.9 temp, lost almost a Pound which is bad for him, O2 is turned up to half a liter, he is VERY miserable, cranky, rash all over his face from all the draining boogies, etc... We went to the doctors yesterday he has a severe sinus infection, decreased breath sounds, MAJOR drainage in the back of his throat, not good.

So he is now on Amoxicillin and albuterol for 10 days. If his lungs start sounding worse to me pedi said we'll be in the hospital..... Again! Hopefully the antibiotic will work. I feel so bad for him, all he wants is to snuggle (which is fine by me) and sleep all day but be up all night..... I think I have had about a total of 20 hours sleep in the last week and a half... 3-4 hours a night if I'm lucky.... I hope he gets better soon.....

Long overdue! First Birhtday Pictures!

Here are Bryce's first Birthday pic, and some others!

My handsome Prince!

I know it looks like vomit but its really cake!

Me, Bryce and Nicole at her National Honor Society Induction, Yes she DID get her brains from me!
Tubby Time at Nenen and Grampas! He LOVES WATER!
NICU reunion tent at March for Babies. Bryce is with Aunty Linda.....

Latest Update and a Picture

Bryce now weighs 18lbs. 12oz.
He is in the 3rd percentile for height
Below 3rd for weight and 5th percentile for his big ol' head! (Big head = Big Brains!)

Other than that all is hanging on,. If you can believe it he really isn't the one giving us all the trouble right now its poor Faythe! She just had surgery about 3 weeks ago. She had tonsills, adenoids out due to massive gland abscess we could not get rid of. Also she had to have a plug put in her ear because one of her tubes never fell out and it left a hole in her ear drum, so they had to take fat and skin from behind her ear to plug this hole. THEN last week her pedi recommended we see cardiology because Faythe has "white" spells quite often and we can't explain them, so we went to Child Heart Associates, they did EKG and echo, those looked good. The doc thinks the rhythm of her heart is off so she has been fitted with a heart monitor that she has to wear 24/7 for the next 30 days to see if we can pick up anything! I should have my nursing degree at this point, I pretty much know all you can about this stuff and how to operate all the monitors etc....

Anyway other than that things are good. Finally trying to get our house in order. We bought it 2 years ago but the first year we had it we were just trying to get in and last year is when Bryce came so no work done then either... Catching up on it now. I raked and mowed for hours yesterday.... I now realize how many muscles I have in my body because they all hurt!!!!



This is how I found him this morning..... Oxygen on his forehead!

Some of us at the March for Babies the rest of my team wasn't here yet.