Lilypie 2nd Birthday Ticker
Lilypie 2nd Birthday Ticker

Thursday, September 27, 2007

Increase o2

So as of today Bryce is now 8lbs. 13oz. We went to his pulmonologist Tuesday and he decided that due to Bryce now having pulmonary hypertension and having the ALTE we needed to increase his oxygen instead of giving him time off every day. Bryce is now on 300 cc's 24/7. And instead of being monitored only at night he needs to be on the pulse ox all day as well to watch his sats carefully. They want to be sure he doesn't go under 95%. His nurse came today and said he is wheezing again... Who wants to bet we end up in the hospital this weekend. Hopefully not, but we'll see. Although Steve and I are still married we have decided that it is only fair for us to split the kids on the weekends like a divorced couple would do since I am in much need of a break, so this weekend is my weekend off! What am I going to do????? The sad part is I probably won't do anything! I will probably stay home with the kids. BUT I won't have to do the dirty work I will just get to play and Steve will do all the crappy stuff! I wonder how long this arrangement will last..Hmmmmmm.... Anyway we also saw Bryce's GI doc, we figured out the Bryce is allergic to Reglan so we will not be taking that anymore, so for now he is on 15mg of Prevacid, hopefully this will help with the GERD, it seems the GERD plays a HUGE part in him having the ALTE's. For now thats about it. Pics coming soon. I am trying to get one of him smiling so everyone can see just how precious he is!

1 comment:

Unknown said...

Holy Cow. I think of you often because Emma was born around the same time. You are a strong mom to be with him through all of this. How are the girls?

Kristi

Go Patriots!!!

Go Patriots!!!
Finally Football season!


Cute

Look at my muscles!

Look at my muscles!

No Oxygen!

No Oxygen!
So who does he look like????

VAPO THERM!!!!! Yipee!!!

VAPO THERM!!!!! Yipee!!!
Look at me I'm on VapoTherm now! You can see my fat cheeks!

July 5, 2007

July 5, 2007
First day no oxygen...

Apnea study

Apnea study
On Monday 7/2/07We participated in an Apnea study for UMass Medical School, it is a study to try to prevent apnea in preemies.


Colee holding Bryce

Faythe Holding Bryce

We're home!

Fist time trying out the carseat before going home

Cute!

Cute!



Daddy and Bryce

Daddy and Bryce
Finally I remembered to take a picture!

Sleeping...

Sleeping...

Just to get an idea of how small Bryce is, that is my hand and its almost twice the size of him. This pic is from last week.

2lbs. 11.6oz.

Coming out for my first tubbie!

Coming out for my first tubbie!

My first Tubbie

My first Tubbie
Anne (bryce's nurse) Putting him in the tubbie for the first time

The Mommy Massage!

The Mommy Massage!
Ahhh... This is the life!

Mmmm... Fingers!

Mohawk!!!!

Mohawk!!!!
Anne not only gave Bryce his first tubby, but she also gave him his first Mohawk!

I'm only the cutest baby EVER!

I'm only the cutest baby EVER!

Mad??? What gave you that idea?

Mad??? What gave you that idea?

Peek-A-Boo

Peek-A-Boo
So in this game what comes after you put your hands over your eyes???

Bryce trying to pull out his breathing tube

Bryce trying to pull out his breathing tube
Is this thing really NECESSARY??

Bryce holding onto a toy instead of his breathing tube and pulling it out!

Mom pretty sure you should have someone else take the picture and not try to do it yourself!

Just Me and My Mom!

Just Me and My Mom!
May 8, 2007

Even on bad days I'm still so Cute!

Please NO MORE PICTURES!

Please NO MORE PICTURES!
Would you stop with the camera already!

Clean blankets, clean bum what more can a boy ask for??

Boy am I tired!

Boy am I tired!

Changing my Bed

Changing my Bed
Mom gets to pick me up while my nurse changes my bed

Happy Birthday Mommy!

Happy Birthday Mommy!
First time I ever got to hold Bryce

Best birthday gift a mom could have aked for.