Since the last update a few things have changed. Bryce is on O2 24 hours a day now at 200 cc's. We went to the Pulmonologist on the 24th and he decided that Bryce needed oxygen 24/7. He took some blood and a chest Xray, the blood was fine, the Xray was OK has scarring from the vent typical of a 24 weeker. We go back on the 25th of Sept and may be able to come down on the cc's we'll see. He sats between 85-93 which isn't horrible but for a baby that is on O2 it should be better. He does get to 100 but hangs lower 90's. Anyway he is now 7lbs. 4oz. 20.25 inches. He has been gaining weight much better since being on O2, which is good. Also we had a follow up ultrasound for his kidney issue, they confirmed kidney stones, left kidney dilated with fluid etc... Just going to continue to follow I guess. We see Urology in October.
Two days ago he got his first cold. Well I think its a cold, he's really stuffy and I have to suction him 8-10 times a day, he hates it. Pedi said to watch it and see what happens. Knock on wood so far so good, no fever or anything just boogies.... He still does not sleep EVER!!!!! I don't know what to do about this problem, I am losing my mind. I maybe get about 10 hours of sleep per week and I can't function like that. Its so hard. He cries allot too and I'm not sure why. He doesn't seem to be in pain, I feed him I change him and nothing works unless I am holding him and i can't hold him 24/7 .... Can I????Nicole started school last week so I don't have my helper anymore, thats been a bit of an adjustment, but I guess I'll survive. Faythe starts pre-school Friday she's very excited, its 3 days a week half days. It'll be allot of work for me but good for her, she needs other kids to play with... So like I said I have posted some new pictures!
Two days ago he got his first cold. Well I think its a cold, he's really stuffy and I have to suction him 8-10 times a day, he hates it. Pedi said to watch it and see what happens. Knock on wood so far so good, no fever or anything just boogies.... He still does not sleep EVER!!!!! I don't know what to do about this problem, I am losing my mind. I maybe get about 10 hours of sleep per week and I can't function like that. Its so hard. He cries allot too and I'm not sure why. He doesn't seem to be in pain, I feed him I change him and nothing works unless I am holding him and i can't hold him 24/7 .... Can I????Nicole started school last week so I don't have my helper anymore, thats been a bit of an adjustment, but I guess I'll survive. Faythe starts pre-school Friday she's very excited, its 3 days a week half days. It'll be allot of work for me but good for her, she needs other kids to play with... So like I said I have posted some new pictures!
5 comments:
He is such a cutie. Sorry to hear about the oxygen. Brighter skies are in the horizon. Remember to breathe and try to take some time to yourself, when you get the chance. You are a strong person and I admire you. Don't forget to smile.
Sandie
He is absolutely adorable. You will get through this - sleep or no sleep. I admire you for all your strenghth through this - hang in there.
Ohhh he is such a cutie!
Hey...oxygen happens...lol. It does help with weight gain, etc. Edwin was pretty high maintainence and needy when he first came home for the first couple of months. The well-intentioned medical people often mentioned it could be due to nuerological issues which freaked me out of course...so if someone metions it to you don't get too freaked. Over the past couple of months Edwin has calmed down SOOO much. He is like a different kiddo. One day Edwin Sr said, "hey Edwin isn't fussy anymore. Who switched my baby?" It was that drastic a change. Bryce is probably just getting used to his new surroundings and letting you know he didn't appreciate those heel sticks and not being able to come home for so long. He is sooo cute...oh I already said that huh?! :)
I found your blog through Stephanie aka 23wktwins'mommy..
Your son is sooooooooo cute :) and as for the 02, ehhh it happens, we were on it for a while too..
Hang in there and keep up the good work
What a beautiful baby!! He seems to be doing so good. My baby Michael is on oxygen. Just make sure he doesn't pull his canula out. Michael loves to pull it out and suck on it :)
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